photo courtesy of Barry Rodriguez

Sunday, April 17, 2011

Suffering

"Even in the deepest suffering, there is significance. There is a meaningful process of positive possibilities. We have to recover the language of humanity...we cannot understand suffering without it. There's this struggle in life in every class of people...it's what we do with it that matters." -Dr. William B. Hurlbu


There is a man named Pastor Peter who helps out with Mission to Ukraine from time to time. He is an eccentric man who is incredibly outgoing and unreserved....the room always lights up when Pastor Peter arrives. He only speaks Russian and Ukrainian, so we spoke primarily through interpreters and gestures. One day he asked if I wanted to come to his church in "the village". I was curious to see what church was like in the rural areas of Ukraine, so of course I said yes. He made the arrangements with Ira and before I knew it I was being picked up in his van, zooming down a snowy country road with the city in our rearview mirror. Thank goodness Tanya was with me as a translator because I would not have known what was happening.


As Tanya and I sat in our seat waiting for church to begin, Paster Peter came up and asked (in Russian) what I was going to preach about today. My heart sank. As amazing as I am at speaking (ha!), I had nothing prepared. I gratefully declined his invitation to preach, but consented to introducing myself and saying a few words about my work with people with disabilities. So with Tanya's help, I spoke to a room full of Ukrainian men and women about who I am, where I come from, and why I am dedicated to changing the lives of people with disabilities. I spoke about my education, about Ben, and about my work with Mission to Ukraine. I always smile because it is in those moments where I knew that Ben's story was changing lives as well.



After sitting through a long, incomprehensible sermon in Russian, I suddenly found myself surrounded by a group of old Ukrainian babushkas (Russian word for 'grandmother'). One after another they came up to tell me their story. After several engulfing, grandmotherly hugs, one lady (who was waiting patiently in the background) came up to me with tears in her eyes. She told me of her severely disabled grandson who is trapped at home due to his condition. At that moment my heart resonated with her tears...her pain was so real. She did not speak of her grandson as a burden, but as a victim of society's shortcomings. When she finished telling me of her grandson she asked me to bless her. I was taken aback. Who was I to bless her? As I layed my hands on her and prayed aloud, it started to hit me....I, Emily Wallace from Greenwood, Indiana, was carrying this Ukrainian babushka before the cross. I had no commonality with this woman that I was praying for, but we were connected in every way through our humanity. Once I was finished praying, she took my face and kissed each cheek.


Later that day we boarded Pastor Peter's van. In my mind I prepared for the long journey home, thinking about what I would do to relax once I was back in Zhytomyr. But as we drove down the road Tanya informed me that we were going to make a house visit to a woman with a disability whom Pastor Peter's church is supporting. Right away I mentally packed away my craving for rest. I asked Tanya to find out about the woman and what sort of disability she had. Pastor Peter's only reply was, "just wait until you meet her".


A few minutes later Pastor Peter turned off of the main road onto a country path, which was covered in several feet of snow. If it weren't for the van, we would never have made it through the snow-covered road. There was nothing around us but what appeared to be old abandoned shacks. Suddenly, I was amazed to find that we were stopping in front of one of them. Could it be that this woman lives in one of these woodsheds? Pastor Peter put the van in park, turned to me and said, "follow me". As I tracked through the snow toward the shed that Pastor Peter had disappeared into, I began to realize that no amount of education could have prepared me for what I was about to experience.


The building that I entered was nothing more than a poorly constructed woodshed. There were no floors, only dirt, and the roof looked like it was barely holding on. The room was empty except for a small fire pit and a broken old couch with a single blanket. As I looked around I noticed that the holes in the walls did nothing to keep the 10 degree weather and bitter winter wind from blowing the entire structure down. Pastor Peter was listening to a woman who was feverishly speaking at him. I didn't have to understand Russian in order to know that she was psychotic and having a manic episode. Tanya leaned over and explained that she was having delusions about a doctor that she found in the paper. Having had experience with people suffering from mental illness, I was able to instruct Pastor Peter how to speak to her - that her reality is not ours. Immediately he took the paper from her and put it in the fire. He pled with her to come to church so they could minister to her and give her food. He also said that he would be coming back with some men from the church to patch up some of the holes in the wall. Before leaving, Pastor Peter, Tanya, and I laid hands on her and prayed.


Since that day I have thought a lot about suffering. I had never experienced someone with more suffering than that woman in the shed that day. Her life was in shambles. Her world was empty and she had nothing - not even her sanity. But it was through that suffering that I could identify with her. No matter how we suffer, no matter who we are or where we come from....we can all converse through suffering. It's what makes us human. It breaks down the barriers and facades that we put up to try and make everyone think we are ok. But we're not. We all suffer. What's beautiful is that we all have the chance to remember it, and learn from it. We all have the chance to use it to touch someone else through their struggle. It is those moments, when something touches you and connects you to another human being, that we experience what we're really made of.

Tuesday, April 12, 2011

Romaniv

I'm not the journaling type...and I've never kept a diary (except for a brief attempt as a 10-year-old girl who only wrote about boys and cooties). Unfortunately, I failed to write down my experiences during my time in Italy and Ukraine, which both happen to be very significant milestones that shaped where I am now. So, I will attempt to backtrack here, starting with some memories from my trip to Ukraine.

Getting ready for my trip to Ukraine was a rush of emotions. While I was experiencing true excitement for the chance to live out my dream, deep down I was frightened. I was desperately trying to muster up every ounce of strength from within.....trying to convince myself that I was strong and confident enough to overcome such a daunting task. I had never been to Ukraine and I certainly didn't know what to expect. As I boarded my plane in Indy for the almost-24-hour trip, I felt so small and trivial. Knowing that the people that were waiting for me in Ukraine had such great needs I kept thinking "Who am I, to go?"...."I have no experience - how am I ever going to be able to help?".

After landing and going through customs (with a wink from the passport officer), I was able to meet up with Ira, my host. Suddenly, I found myself in a van going 70 mph down a damaged, icy, two-lane road which happened to be the only highway in Ukraine. After 26 hours of traveling, we arrived in the city of Zhytomyr and I was finally able to rest. The next morning I awoke to a freezing cold morning and snowy skies. This was to be my reality for the next 3 weeks.


After walking for 30 minutes through the bustling, icy streets of Zhytomyr, Ira and I arrived at the MTU headquarters. After devotions and prayer with the staff, I boarded a bus with four other MTU staff and headed out for the hour-long journey to Romaniv, an orphanage for boys with severe disabilities. As we headed further into the wilderness, I felt myself stepping back into 19th century Russia. The large soviet-style apartment complexes turned into old farmhouses that looked more like barns, the paved roads (which actually were more like ice-skating rinks) turned into narrow dirt paths, and the cars turned into horse-drawn sleighs. It was as if I was living in a blurry dream. Before I knew it, we arrived at a complex of small buildings nestled in the countryside of Ukraine. Looking back, I had no comprehension of the impact that place would have on me.


As I reflect on that initial visit to Romaniv, all I can think of is the burning in my heart for the boys. I had heard about them from the staff and was warned about the sounds and smells that I would experience. But no words could have prepared me for that moment. Walking through the doors we were met with smiling, shouting, waving boys running at us from all directions just for the chance to shake our hands. While noticing the stench of urine and feces and the sounds of moaning and yelling in the background, I took no heed. I didn't care. I wanted to hug every single one of them, no matter how dirty or how rank. I wanted to shower them with every ounce of love in my heart.

I knew at that moment that I was meant for them.

photo courtesy of Barry Rodriguez
www.worldnextdoor.org



photo courtesy of Barry Rodriguez
www.worldnextdoor.org

Friday, April 8, 2011

We All Have Reasons for Moving

The title of this blog was named after my favorite poem by Mark Strand: Keeping Things Whole. For me, it communicates the very fabric of my heart.

Keeping Things Whole
Mark Strand

In a field
I am the absence
of field.
This is
always the case.
Wherever I am
I am what is missing.

When I walk
I part the air
and always
the air moves in
to fill the spaces
where my body's been.

We all have reasons
for moving.
I move
to keep things whole.

When thinking about the millions of people with intellectual disabilities who are marginalized around the world on a daily basis, I am filled with a sense of duty and devotion to impact their lives. With my background in occupational therapy and my personal experience with my brother, I see myself as a source of fuel for the fire of change. But I say this from a place in my heart that resonates with Strand's message of unrest and dissatisfaction. I have a reason for moving from place to place, from country to country, in order to help people. Just like Strand, my reason is to keep things whole. My work will never be done...not until people with intellectual disabilities, no matter how profound, are enjoying their lives to the fullest extent in the smallest and darkest corners of the world.

I must move to keep things whole.